Our survey

Introduction

Our Birmingham and Solihull Dementia Strategy 2022 - 2027 is a plan for how everyone working in health and social care will work together across Birmingham and Solihull to improve the lives of people with dementia and those who look after them.

We have asked people with dementia, their carers, and our partners in health and social care what we should focus on to improve the care and support we provide to people, from activities aimed at preventing dementia, through to care at the end of people’s lives.

NHS Birmingham and Solihull, Birmingham City Council and Solihull Metropolitan Borough Council will work in collaboration with stakeholders including statutory, voluntary and third sector organisations. We will use this strategy, with its detailed action plan, to hold us accountable for the improvements we will make over the next five years. You can view our draft strategy here.

We would be grateful for your feedback on our strategy.
Your information

Your answers will be used and stored by NHS Birmingham and Solihull to help us understand your views about our Dementia Strategy. All responses are kept confidential, and your responses are anonymous - unless you choose to provide your contact details at the end of the survey.

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* 1. Which of the following roles apply to you. Please tick all that apply.

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* 2. How long have you lived or worked with dementia?

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* 3. If you have dementia or care for someone with dementia, how long did the diagnosis take?

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* 4. If you are a professional, how quickly were you able to respond to requests for services?

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* 5. How happy were you with the information provided about dementia services?

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* 6. Do you agree with the strategy’s four priorities?
  • Information on prevention, early intervention and support.
  • Access to a timely diagnosis with pre and post diagnostic support.
  • Prevention of crisis and supporting people with dementia, their families and communities.
  • Improving the quality of personalised care and support planning for people with dementia, including advanced care planning.

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* 7. Please rate the importance of our Preventing Well goals:

  Very important Important Neutral Low importance Not very important
Increasing knowledge of the ways dementia can be prevented
 Increase the awareness of dementia and the importance of early diagnosis
Increase people’s knowledge of available dementia services and supporting information
Increase care professionals’ knowledge of dementia services and referral pathways post-pandemic
Improve access to education and training programmes for people and care professionals

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* 8. Please rate the importance of our Diagnosing Well goals:

  Very important Important Neutral Low importance Not very important
To increase the number of clinically appropriate referrals for memory assessment
To offer all those referred for a memory assessment pre-diagnostic support information
To increase the dementia diagnosis rate in Birmingham and Solihull to meet the national target of 67.7%
To offer all individuals diagnosed with dementia access to support services which are personalised to their individual needs
Offer all carers / loved ones of those diagnosed with dementia equity in access to support services

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* 9. Please rate the importance of our Treating Well goals:

  Very important Important Neutral Low importance Not very important
Personalised Care and Support Planning to include advanced care planning to be made available to all people diagnosed with dementia.
All people diagnosed with dementia should have access to medication and non-medication support services to enable them to live well with dementia.

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* 10. Please rate the importance of our Supporting Well goals:

  Very important Important Neutral Low importance Not very important
Pre-diagnostic support information for people and their loved ones who are awaiting a memory assessment.
Clear referral pathway for support once diagnosis is received.
Post-diagnostic support service which enables holistic support and signposting for the patient and their loved ones, to include physical, psychological, financial and emotional support.

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* 11. Please rate the importance to you of our Living Well goal:

  Very important Important Neutral Low importance Not very important
We will take a Strengths based approach to dementia in where we support to keep people as independent as possible for as long as possible using all the current resources and services available.

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* 12. Please rate the importance to you of our Dying Well goals:

  Very important Important Neutral Low importance Not very important
Patients to be cared for and die in their preferred place with respect and dignity.
Increase awareness that Dementia can reduce life expectancy - is a life limiting condition.
Planning for care at the end of life should be offered to all those diagnosed with dementia, to include a discussion of cardiopulmonary resuscitation (CPR), and to record the patient with involvement where appropriate of their loved ones.
Promote planning for care at the end of life to take place whilst the patient can communicate their needs and wishes.

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* 13. Do you have any other comments about our Dementia Strategy?

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* 14. If you would like to discuss your comments in more detail or take part in a citizen’s panel on dementia, please leave your contact details.